Quo vadis Datenlinkage in Deutschland? Eine erste Bestandsaufnahme

authored by

Stefanie March, Manfred Antoni, Joachim Kieschke, Bianca Kollhorst, Birga Maier, Gabriele Müller, Murat Sariyar, Mandy Schulz, Swart Enno, Jan Zeidler, Falk Hoffmann

Abstract

In recent years, linking different data sources, also called data linkage or record linkage, to address scientific questions, is being increasingly used in Germany. However, there are very few published reports and new projects develop the necessary tools independently of each other. Therefore, a team of researchers joined together to exchange their experiences on data linkage and to give suggestions on how linkage could be done for scientists, reviewers as well as members of data privacy boards and ethics committees. It is the aim of this article to assist future projects that want to link German data on an individual level. In addition to the legal framework conditions (data privacy), also examples of types of data linkage, their fields of application und potential pitfalls as well as the methods of preventing them will be described in an application-oriented fashion.

Organisation(s)

Center for Health Economics Research Hannover (CHERH)

External Organisation(s)

Otto-von-Guericke University Magdeburg
Berlin-Brandenburg Myocardial Infarction Registry e. V.
Technische Universität Dresden
Carl von Ossietzky University of Oldenburg
Institute for Employment Research (IAB) of the Federal Employment Agency
Epidemiological Cancer Registry of Lower Saxony
Leibniz Institute for Prevention Research and Epidemiology - BIPS
Technology, Methods, and Infrastructure for Networked Medical Research (TMF)
Bern University of Applied Sciences (BUAS)
Central Research Institute for Ambulatory Healthcare in Germany (Zi)

Type

Article

Journal

GESUNDHEITSWESEN

Volume

80

Pages

e20-e31

ISSN

0941-3790

Publication date

2018

Publication status

Published

Peer reviewed

Yes

ASJC Scopus subject areas

Public Health, Environmental and Occupational Health

Sustainable Development Goals

SDG 3 - Good Health and Well-being

Electronic version(s)

https://doi.org/10.1055/s-0043-125070 (Access: Open)