Good practice data linkage (GPD)

A translation of the german version

verfasst von

Stefanie March, Silke Andrich, Johannes Drepper, Dirk Horenkamp-Sonntag, Andrea Icks, Peter Ihle, Joachim Kieschke, Bianca Kollhorst, Birga Maier, Ingo Meyer, Gabriele Müller, Christoph Ohlmeier, Dirk Peschke, Adrian Richter, Marie Luise Rosenbusch, Nadine Scholten, Mandy Schulz, Christoph Stallmann, Enno Swart, Stefanie Wobbe-Ribinski, Antke Wolter, Jan Zeidler, Falk Hoffmann

Abstract

The data linkage of different data sources for research purposes is being increasingly used in recent years. However, generally accepted methodological guidance is missing. The aim of this article is to provide methodological guidelines and recommendations for research projects that have been consented to across different German research societies. Another aim is to endow readers with a checklist for the critical appraisal of research proposals and articles. This Good Practice Data Linkage (GPD) was already published in German in 2019, but the aspects mentioned can easily be transferred to an international context, especially for other European Union (EU) member states. Therefore, it is now also published in English. Since 2016, an expert panel of members of different German scientific societies have worked together and developed seven guidelines with a total of 27 practical recommendations. These recommendations include (1) the research objectives, research questions, data sources, and resources; (2) the data infrastructure and data flow; (3) data protection; (4) ethics; (5) the key variables and linkage methods; (6) data validation/quality assurance; and (7) the long-term use of data for questions still to be determined. The authors provide a rationale for each recommendation. Future revisions will include new developments in science and updates of data privacy regulations.

Organisationseinheit(en)

Center for Health Economics Research Hannover (CHERH)

Externe Organisation(en)

Otto-von-Guericke-Universität Magdeburg
Hochschule Magdeburg-Stendal
Universitätsklinikum Düsseldorf
Universität zu Köln
Epidemiologisches Krebsregister Niedersachsen (EKN)
Berlin-Brandenburger Herzinfarktregister e.V.
Technische Universität Dresden
IGES Institut GmbH
Universität Bremen
Ernst-Moritz-Arndt-Universität Greifswald
Zentralinstitut für die kassenärztliche Versorgung in Deutschland (Zi)
DAK-Gesundheit Zentrale
Carl von Ossietzky Universität Oldenburg
Technologie- und Methodenplattform für die vernetzte medizinische Forschung e.V. (TMF)
Leibniz-Institut für Präventionsforschung und Epidemiologie - BIPS GmbH
Hochschule für Gesundheit Bochum
Deutsches Diabetes-Zentrum (DDZ)
Techniker Krankenkasse (TK)

Typ

Artikel

Journal

International Journal of Environmental Research and Public Health

Band

17

Seiten

1-20

Anzahl der Seiten

20

ISSN

1661-7827

Publikationsdatum

01.11.2020

Publikationsstatus

Veröffentlicht

Peer-reviewed

Ja

ASJC Scopus Sachgebiete

Öffentliche Gesundheit, Umwelt- und Arbeitsmedizin, Gesundheit, Toxikologie und Mutagenese

Ziele für nachhaltige Entwicklung

SDG 3 – Gute Gesundheit und Wohlergehen

Elektronische Version(en)

https://doi.org/10.3390/ijerph17217852 (Zugang: Offen)